The past several months have been a whirlwind. So much has happened with Campbell and with our family, and I’ve fallen behind on updates.
Instead of the cranial reduction surgery in April, Campbell had a shunt revision at CHLA. About a month later, she began projectile vomiting and lost consciousness so we went to the ER. Her shunt was full occluded, and she had an emergency revision done at Children’s Hospital of Orange County (CHOC). Since then, she is doing very well and is enjoying summertime activities with her brothers like swimming with friends, going to the beach, playing at the park, and going for walks.
While she’s not yet speaking, Campbell’s personality is emerging and she is making great strides with her therapists. She also definitely shows her preferences on toys and activities. It is so fun to see her “spark” come alive.
This summer is bittersweet for us as our family is relocating to Colorado in several weeks. Joel will be working in Aurora, CO, which is near Parker where I grew up and where we will be living. While we are excited about what this move means for our family life, we are very sad to leave our friends and community in California. Our friends and church community have carried us during some very dark and hard days, and I don’t know how we would have made it through without them. My heart grieves to leave and overflows with love and gratitude for the wonderful love and compassion of these people. This community is amazing. May we learn to love others as we have been loved.
With the move, Campbell’s care is transitioning. Her every day, on-going care will transition to Denver, and her surgical team will be in southern California. We are working with medical teams in both places to ensure that she is covered. This means Campbell will be back in So Cal frequently during the next several years, which is fitting since she is our California girl.
Campbell Taylor's Journey 